WEBVTT

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[MUSIC PLAYING]

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<v Narrator> Pursuit of a More
Equitable World, Disability,

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Culture, and Society.

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[MUSIC PLAYING]

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An excerpt from
John Kemp's keynote

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address at the
University of Washington.

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<v Sheryl Burgstahler> Thanks
to all of you for coming.

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Good afternoon.

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I'm Sheryl Burgstahler,
the founder and director

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of the DO-IT Center,
where DO-IT stands

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for Disabilities,
Opportunities, Internetworking,

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and Technology.

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In DO-IT, we work to increase
the academic and career success

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of individuals with disabilities
and make physical spaces,

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student services, teaching
and learning activities,

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and technology more
welcoming and accessible

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to people with disabilities.

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I have the pleasure
of introducing

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our keynote speaker, and
his name is John Kemp.

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I met him around the time when I
founded the DO-IT Center, which

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is like, more than 25 years
ago, and we've sort of been

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traveling in similar
circles, so it's really

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especially nice for me
to have you here, John.

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So I've always been impressed
with his personal insights

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about the history of
disability rights,

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parallels between this
movement and others

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that improve our world by
more fully engaging people

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from all different
groups, benefiting

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from their diverse
talents and perspectives.

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He's been an ally of DO-IT
and other organizations

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that serve to create a
more inclusive world,

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and he's even mentored a
few of the DO-IT scholars.

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He is a renowned
disability rights leader

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who co-founded the American
Association of People

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with Disabilities, and
is now the president

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and chief executive of a network
of nonprofit organizations

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that provide services
that educate, employ,

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and empower children and
adults with disabilities.

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His talk today is
titled "Then and Now,

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People with Disabilities and
Our Pursuit of a More Equitable

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World."

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So will you please
join me in welcoming

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John Kemp to the podium.

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[APPLAUSE]

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<v John Kemp> All right,
good afternoon.

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All good?

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<v Sheryl Burgstahler> All good.

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Yep.

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JOHN KEMP> Do you know the
four promises in the ADA?

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Have you memorized those?

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Equality of opportunity,
independent living,

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economic self-sufficiency,
full participation.

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OK?

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Equality of opportunity,
independent living,

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economic self-sufficiency,
full participation.

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Everything that's
written in the ADA

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is intended to support
those four promises.

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They are the
cornerstone of the ADA.

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We have more empowered people
today in the United States

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and around the world than ever.

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I like talking about culture.

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I like talking about who we
are as a culture of people

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with disabilities.

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Because I think it's
do we like ourselves

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enough to think that we
are worthy of belonging

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and righteously
belonging in this world?

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Do we apologize first, I'm
sorry, but I have a disability

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and I can't quite get
into this building.

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Don't say that.

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Don't think that.

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Don't ever think that.

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Disability culture is not
simply the shared experience

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of oppression.

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This is not about,
oh, woe is me.

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I'm so oppressed.

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This is about why have we not
been able to convince others

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that what we are needing and
wanting to do is so important,

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why buildings have
to be this accessible

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and have services
like interpreter

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services and the ability
to have voice recognition

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and other things like this.

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The elements of our culture
include our emerging art

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and humor.

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Have you seen good
disability art?

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Have you embraced it?

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A lot of artists
with disabilities

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can do anything they want
in art, but some of them

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choose to tell our story through
their art, their writing,

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their drawings, their
plays, and it's powerful.

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It's first person discussion
about what our life is all

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about.

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The most compelling evidence
of a disability culture

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is the vitality and
universality of these elements,

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despite generations
of crushing poverty.

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Oh, believe me, you can't
get Social Security benefits

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and Medicaid unless you spend
down any assets until you're

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poor enough to
qualify, and then you

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have to stay poor to
be able to continue

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to receive these benefits.

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You can't get wealthy.

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So we have these
terrible public policy

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issues that still remain on
the books after many of us

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have fought for 40 years
to try and change them,

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social isolation, a
lack of education,

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silencing, and even
imposed immobility.

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So what are the core values
of a disability culture?

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A heightened acceptance
of human differences.

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There are only a couple here.

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A heightened acceptance of
human differences, whether they

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be racial, economic, class.

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But here's my point.

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If I am always pointed
out to be different,

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whether it be that person on
the plane sitting next to me,

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what happened to you?

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If I'm always pointed
out as different,

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how do I look at
other people, not just

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other people with disabilities,
but people who are different

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from me in their age,
their gender, their race,

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how do I look at them?

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I'd better be very
tolerant and very accepting

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if I want them to accept
me as a peer and an equal.

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That's all I want.

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I don't want secondary gain.

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I don't want to get something
that I didn't deserve.

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I want to just be equal.

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That's what we all should want.

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We have this sophisticated
future orientation now.

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So when I came here, I said, I
know this place is accessible.

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It's a university.

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It's Sheryl.

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It's everybody, the technology,
the physical plants,

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it's everything.

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I'm not worried about is
this place accessible.

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Ramps coming up the
front of the building

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into here onto the stage.

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My expectation is accessible.

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No more phone calls in advance.

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Now, the next generation of this
is, it's accessible, but are

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we included and are
people talking to us?

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Oh, we're in the room,
but does anybody--

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does everybody walk right
past us, talk over us?

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Don't you love that one?

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I love that one.

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I'm sitting in my
scooter and two people

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are talking over my head
like I'm a lamp or something.

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I'm like, hello?

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Hello, hello, really.

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How do you respond when
somebody says nothing to you,

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or ignores you, or disses
you right to your face?

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And believe me, I've had people
talk trash to me to my face

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just because I
have a disability.

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And I'm dumbfounded that
I haven't figured out

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how to overcome that and
my anger just rises up.

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But I don't let it take me over.

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I'm offended, but I don't
respond in a violent way ever.

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But these are our challenges.

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How do we respond to these
things that happen in our life?

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I don't want to go around
all day being unhappy.

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I do not.

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I don't want to go
around all day being mad.

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My job is to win
over every person

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without sacrificing my dignity.

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I will not do that.

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And in fact, when I'm
sitting on planes,

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and people sitting next to me
always have three questions,

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and I'm sure those of you who
fly understand this very well,

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those of you with disabilities.

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Where are you going?

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Where are you from?

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What happened to you?

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Those are the three questions.

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And then they come up after
I give them my simple answer,

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and they say, you know, they
make hands now, don't you?

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And I go, really?

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Really?

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Of course I do.

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And I usually want to
say, what happened to you?

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But I don't say that to them.

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Of course I know that.

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But I can function
very, very well.

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There are many things I can do,
and I accept the things that I

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can't.

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And I'm not sure
what the gain is.

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And all I need is for
my artificial hand

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with articulating
fingers not to move

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when I'm 3,000 miles away
from the person that's

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going to fix them, and
then I'm in big trouble.

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Just like everybody who
uses chairs, power chairs,

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we always worry about
what happens if.

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<v Sheryl Burgstahler> Any questions?

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<v Audience Member 1> Since
you were growing up

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in the '60s all
the way until now,

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would you say that the
treatment of disabled people

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has changed from more
of like, aw, you're

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a freak, to more of a passive
aggression [INAUDIBLE]

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like that?

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Do people treat you different
from the past to now,

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and is it better?

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<v John Kemp> They
treat me differently,

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and they treat me--

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they treat me better.

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I will say they treat me better.

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And the power of
media, good and bad,

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has definitely lifted us up.

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And I think more and more
of us are seen as regular

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and appropriately
belonging to society.

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But there are still
some bigots out there

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who can never accept anybody
that has a disability,

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will not accept people
with limitations,

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even though probably we're all
going to age into disability

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if we live long enough.

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So they don't get
that part of it.

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But for the most part,
life has gotten better.

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I think our movement's
gotten too timid.

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I think we really
are playing too safe.

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And part of this game
is that we sort of fear

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like, if we yell too
much at daddy or mommy,

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they're going to take away
our money and our rights.

00:11:32.960 --> 00:11:37.760 align:middle line:84%
And it's like, no, no, no, we
have to be stronger, louder,

00:11:37.760 --> 00:11:39.470 align:middle line:90%
in their face a lot more.

00:11:39.470 --> 00:11:43.520 align:middle line:84%
But we have to also win
over the hearts and minds

00:11:43.520 --> 00:11:48.560 align:middle line:84%
of everyday people
about why inclusion

00:11:48.560 --> 00:11:50.870 align:middle line:90%
has to be our standard.

00:11:50.870 --> 00:11:52.370 align:middle line:84%
And I don't think
we've come up with

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an appropriate public education
campaign and the like.

00:11:58.470 --> 00:12:02.440 align:middle line:84%
The other thing I really
think works is presence.

00:12:02.440 --> 00:12:05.750 align:middle line:84%
The more of us who are on
college campuses, the more

00:12:05.750 --> 00:12:09.170 align:middle line:84%
of us who are in the
workplace, the more of us who

00:12:09.170 --> 00:12:11.600 align:middle line:84%
are in our communities,
the more public

00:12:11.600 --> 00:12:14.770 align:middle line:84%
will see that we are
just like everyone else,

00:12:14.770 --> 00:12:16.760 align:middle line:84%
and that we are
part of the fabric.

00:12:16.760 --> 00:12:19.520 align:middle line:90%
So presence is a big part of it.

00:12:19.520 --> 00:12:23.300 align:middle line:84%
Being out there and being a part
of everything that's going on

00:12:23.300 --> 00:12:24.650 align:middle line:90%
is really important.

00:12:24.650 --> 00:12:27.920 align:middle line:84%
And you speaking up
is very important.

00:12:27.920 --> 00:12:30.650 align:middle line:84%
So we've got a long way to
go, but we've got to speak up.

00:12:30.650 --> 00:12:31.740 align:middle line:90%
We cannot be timid.

00:12:31.740 --> 00:12:33.740 align:middle line:84%
And I think the older I
get, the more frustrated

00:12:33.740 --> 00:12:36.920 align:middle line:84%
I am as to how timid
this movement has gotten.

00:12:36.920 --> 00:12:41.780 align:middle line:84%
We had some kick butt people at
the beginning of our movement

00:12:41.780 --> 00:12:46.340 align:middle line:84%
in the '60s that would just
chain themselves to buses

00:12:46.340 --> 00:12:51.500 align:middle line:84%
and climb up on their knees
the Supreme Court steps,

00:12:51.500 --> 00:12:54.140 align:middle line:84%
and we don't see any of this
stuff going on these days

00:12:54.140 --> 00:12:55.460 align:middle line:90%
at all.

00:12:55.460 --> 00:12:58.130 align:middle line:84%
And I'm wondering,
what's going on?

00:12:58.130 --> 00:13:00.650 align:middle line:84%
Have they thrown us some
crumbs and we've accepted them,

00:13:00.650 --> 00:13:02.370 align:middle line:90%
and that's good enough for us?

00:13:02.370 --> 00:13:03.860 align:middle line:90%
It's not good enough for us.

00:13:03.860 --> 00:13:06.740 align:middle line:84%
It'll never be
good enough for us.

00:13:06.740 --> 00:13:09.120 align:middle line:90%
It's not equal.

00:13:09.120 --> 00:13:10.070 align:middle line:90%
<v Audience Member 2> Hi.

00:13:10.070 --> 00:13:16.790 align:middle line:84%
So my question is, if you could
tell your younger self when

00:13:16.790 --> 00:13:20.240 align:middle line:84%
you were in college
or at any age,

00:13:20.240 --> 00:13:22.550 align:middle line:84%
either if it's something
about mental health

00:13:22.550 --> 00:13:25.580 align:middle line:84%
you wish you knew, or
something about interacting

00:13:25.580 --> 00:13:27.320 align:middle line:84%
with other people
with disabilities,

00:13:27.320 --> 00:13:31.100 align:middle line:84%
or looking at yourself
with a disability,

00:13:31.100 --> 00:13:34.900 align:middle line:84%
what would you say
to your younger self?

00:13:34.900 --> 00:13:37.007 align:middle line:84%
<v John Kemp> Wow, that's
a great question.

00:13:37.007 --> 00:13:38.840 align:middle line:84%
And by the way, thank
you for the directions

00:13:38.840 --> 00:13:40.250 align:middle line:90%
on getting to this room.

00:13:40.250 --> 00:13:42.470 align:middle line:90%
I appreciate it.

00:13:42.470 --> 00:13:44.120 align:middle line:84%
She helped me get
here earlier today.

00:13:44.120 --> 00:13:48.420 align:middle line:90%


00:13:48.420 --> 00:13:53.780 align:middle line:84%
I would probably say,
open up your mind.

00:13:53.780 --> 00:13:58.040 align:middle line:84%
Have a bigger aperture,
a bigger vision

00:13:58.040 --> 00:14:03.080 align:middle line:84%
of who is a rightful
member of society,

00:14:03.080 --> 00:14:05.120 align:middle line:90%
and that we're all equal.

00:14:05.120 --> 00:14:08.240 align:middle line:84%
And I would probably have to
sit myself down and have a firm

00:14:08.240 --> 00:14:10.520 align:middle line:90%
conversation with myself.

00:14:10.520 --> 00:14:13.100 align:middle line:84%
Because when you're young
and think you're cool

00:14:13.100 --> 00:14:17.570 align:middle line:84%
and all that other stuff and
you get a little cocky and full

00:14:17.570 --> 00:14:20.530 align:middle line:90%
of yourself, it's like--

00:14:20.530 --> 00:14:21.800 align:middle line:90%
it's the worst.

00:14:21.800 --> 00:14:24.630 align:middle line:84%
It's absolutely the
worst thing to do.

00:14:24.630 --> 00:14:26.730 align:middle line:90%
We're all equal.

00:14:26.730 --> 00:14:28.070 align:middle line:90%
And that's what I would have--

00:14:28.070 --> 00:14:31.790 align:middle line:84%
I would have a hard talk
with myself about that.

00:14:31.790 --> 00:14:34.130 align:middle line:84%
If I want to be
regarded as equal,

00:14:34.130 --> 00:14:36.150 align:middle line:84%
then I have to regard
everyone else as equal.

00:14:36.150 --> 00:14:38.720 align:middle line:84%
And that's the way I feel
about everyone, regardless

00:14:38.720 --> 00:14:43.767 align:middle line:84%
of where they came from, how
they acquired their disability,

00:14:43.767 --> 00:14:45.350 align:middle line:84%
why they're here in
the United States,

00:14:45.350 --> 00:14:46.860 align:middle line:84%
why they live
anywhere in the world.

00:14:46.860 --> 00:14:50.827 align:middle line:90%
We are all equal in my eyes.

00:14:50.827 --> 00:14:53.809 align:middle line:90%
[MUSIC PLAYING]

00:14:53.809 --> 00:14:58.790 align:middle line:90%


00:14:58.790 --> 00:15:00.830 align:middle line:84%
<v Narrator> For more
information about DO-IT,

00:15:00.830 --> 00:15:07.230 align:middle line:90%
consult washington.edu/doit.

00:15:07.230 --> 00:15:09.500 align:middle line:84%
This video presentation
was created

00:15:09.500 --> 00:15:12.380 align:middle line:84%
with funding from the DO-IT
Scholars Program, posted

00:15:12.380 --> 00:15:15.320 align:middle line:84%
by Accessible Technology
Services at the University

00:15:15.320 --> 00:15:16.790 align:middle line:90%
of Washington.

00:15:16.790 --> 00:15:20.210 align:middle line:84%
Copyright 2019,
University of Washington.

00:15:20.210 --> 00:15:23.010 align:middle line:90%


00:15:23.010 --> 00:15:25.470 align:middle line:84%
Permission is granted
to copy these materials

00:15:25.470 --> 00:15:28.110 align:middle line:84%
for educational
non-commercial purposes,

00:15:28.110 --> 00:15:31.490 align:middle line:84%
provided the source
is acknowledged.

00:15:31.490 --> 00:15:37.472 align:middle line:90%